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    Development and psychometric evaluation of the Ketogenic Diet Management Scale for Children with Epilepsy-Parent Form
    (Routledge Journals, Taylor & Francis Ltd, 2024) Ayar, Dijle; Bektas, Murat; Unalp, Aycan; Yilmaz, Uensal; Kos, Fulya Merve; Yavuz, Merve; Parlak, Ipek Burcu
    This study was conducted to develop a measurement tool to achieve ketogenic diet management in parents of children with epilepsy and examine its Turkish psychometric properties. The study was conducted on 317 parents using a descriptive correlational method. Data analysis and evaluation were performed using factor analysis, Cronbach's alpha, and item - total score correlation. The scale consists of 20 items and unidimensional factor. As a result of the exploratory factor analysis, the total explained variance of the unidimensional factor was 63.809%. Cronbach's alpha coefficient of the scale was 0.971. The four-weeks test-retest reliability evaluated with intra-class correlation was 0.87. Confirmatory factor analysis indicated, the model fit index results were recorded as follows: 0.95 as the Goodness-of-Fit Index; comparative fit index, 0.96 and normed fit index, 0.94. The study determined that the Ketogenic Diet Management Scale for Children with Epilepsy-Parent Form is a measurement tool that can be used by health professionals and that is used to evaluate parents' ketogenic diet knowledge.
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    Öğe
    Psychometric properties of the Turkish version of the Epilepsy Disclosure Scale-Youth and Parent Versions
    (Academic Press Inc Elsevier Science, 2022) Ayar, Dijle; Unalp, Aycan; Yilmaz, Uensal; Bektas, Murat; Karaoglu, Pakize; Akcay, Ebru; Yanar, Saliha
    Aim: Due to reactions, such as being ridiculed, blamed, or rejected, children with epilepsy and their families may consider epilepsy as something to be ashamed of, and therefore both the child and parents hide the disease from other people. No valid and reliable measurement in Turkish language that evaluates the level of this behavior, which will greatly affect the management of epilepsy, in both children and parents has been found in the literature. This study was carried out to test the validity and reliability of the Epilepsy Disclosure Scale (EDS) - Youth and Parent Versions in Turkey. Materials and method: A descriptive, comparative, correlational, and methodological design was used in the study. The study was carried out with 200 youth with epilepsy between the ages of 8 and 18, who were registered in the pediatric neurology outpatient clinic of a university hospital located in the western region of Turkey, and their parents. The study data were collected using a Descriptive Information Form and the Turkish version of the EDS-Y and the EDS-P. The data were evaluated using content validity index, explanatory and confirmatory factor analyses, Cronbach's alpha, split-half, and item-total score correlation.Findings: The total explained variance of the Turkish version of the EDS-Y consisting of one subdimension and six items was determined as 53.55%, and the total explained variance of the Turkish version of the EDS-P consisting of one sub-dimension and six items was determined as 59.39%. Cronbach's alpha values were 0.864 for the overall Turkish EDS-Y and 0.881 for the EDS-P. According to the confirmatory factor analysis, the model fit indices of both scales were found to be above 0.90 and the factor loads of all items were greater than 0.40.Conclusion: The Turkish versions of the EDS-Y and EDS-P scales have acceptable internal consistency reliability and content and construct validity and can be used by health professionals to evaluate the concealment of epilepsy from the perspectives of both young people and parents.(c) 2022 Elsevier Inc. All rights reserved.
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    The effect of illness-related fears of parents of children with epilepsy during the COVID-19 period on their children ' s seizure self-ef fi cacy
    (Elsevier France-Editions Scientifiques Medicales Elsevier, 2024) Ayar, Dijle; Bektas, Murat; Unalp, Aycan; Yilmaz, Unsal; Kos, Fulya Merve; Okur, Tuncay Derya; Kirkgoz, Hatice Hilal
    Background: Seizure -related self -efficacy is the belief individuals have that they can perform the necessary actions to cope effectively with their seizures. Determining, developing, strengthening, and maintaining the perception of self -efficacy in children with epilepsy facilitates the child 's disease management and their ability to cope with it. This study aimed to assess the impact of epilepsy -related parental fears during the COVID19 period on the seizure self -efficacy of their children. Methods: A total of 321 children with epilepsy and their parents participated in this descriptive, correlational, and cross-sectional study. Data were collected through the Descriptive Information Form, the Seizure SelfEfficacy Scale for Children (SSES-C), and the Epilepsy -Related Fears in Parents Questionnaire (EFPQ). Descriptive statistics, including frequency, percentage, and mean scores, were used to analyze the characteristics of the children and their parents. The Shapiro -Wilk test was utilized to assess the normality of the scale data. Pearson correlation analysis examined the relationship between parents ' epilepsy -related fears and their children 's seizure self -efficacy, while multiple regression analysis determined the effect of parental fears on children 's seizure self -efficacy. Results: The mean age of children included in the study was 12.65 2.37 years. Analysis revealed a strong and significant negative correlation between parents ' epilepsy -related fears during the COVID-19 period and the seizure self -efficacy of their children. In the model created with regression analysis, The mean scores of parents on the short-term fears of parents about epilepsy of the EFPQ explained 85 % of children 's seizure self -efficacy. The mean scores of parents on the long-term fears of parents about epilepsy of the EFPQ explained 85 % of children 's seizure self -efficacy. It was determined that all of these variables together explained 85 % of the seizure self -efficacy of children with epilepsy. Conclusion: The findings of the study underscore the importance of addressing parents ' fears regarding epilepsy, emphasizing the need for healthcare professionals to be aware of and provide support for these concerns. Future studies should focus on interventions to enhance the seizure self -efficacy of children with epilepsy. (c) 2024 French Society of Pediatrics. Published by Elsevier Masson SAS. All rights reserved.